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UPDATE: 08.06.2021
The data grab planned for 01. July 2021 has been postponed to 01. September 2021 after widespread outcry and the threat of a lawsuit against the Government. BUT it doesn’t say yet what the new deadline for the opt out is except “before 01. September”, so I keep the below deadline at 23rd June at the moment.
BBC: “New NHS patient data store delayed by two months.” Link
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People in ENGLAND:
The Guardian, »Your medical records are about to be given away. As GPs, we’re fighting back. GPs in England have been told to hand over all patient data to NHS Digital – potentially to be exploited for corporate profit.«
Link to Guardian article
50+ million people’s medical data are about to be grabbed for a central data base and up for sale to third party for profit companies! All your medical data, sexual issues, mental health issues, any and all personal detail you’ve shared with your GP is up for sale! This is the Tory sh!t we get again! Two years ago they already changed the rules that all of our organs can be harvested when we die. We need to opt out if we don’t want to donate our organs. I am FOR organ donation, but I’m against not being informed or asked!
The Government did this already in 2014, but informed the public and gave the option to opt out. Most people opted out, so now they tried to keep it as quiet as possible and rush this through, just giving us 6 weeks to 1. know about this and 2. to opt out.
And as we’ve seen how the Tories have handled the pandemic and the constant lies, they WILL sell our data for profit under the disguise of “research”! And some try to make people feel guilty if they don’t give their data for research!
IT’S YOUR MEDICAL DATA! DON’T LET ANYONE MAKE YOU FEEL BAD FOR NOT SHARING YOUR PERSONAL MEDICAL DATA!
And sure, the Government says the data will be anonymous, yet the postcode and other sensitive detail will be added. And anonymity can be reversed. And without getting political here, but after so many lies of the Tory Government, I don’t believe a word they say. And I won’t pressured with handing out my precious data for important research! I don’t trust this Government one bit!
Here is how to opt out of the NHS central data base. Data will be collected from 01. July 2021 and many GPs will try to refuse to hand it out as the Government has been sneaky and not given the public this information and enough time!
On below page of the digital nhs website, scroll to the link “returning this form”
Download, fill in & send to GP by 23.06.
❗️This is the Type 1 opt-out of the upcoming data base❗️
This is THE MOST important document you need to download and hand to your GP!
This form NEEDS to be send/given to your GP by 23. June!
After this deadline people can still opt out, BUT whatever medical records you had before the 23. June will be shared and you cannot retract or get it deleted! So, you MUST opt out by 23. June.
Also, if you are a parent, legal guardian of children, an elderly, disabled, anyone who can’t opt out by themselves, you can opt out for them as well. People can always opt in later if they change their mind, but if you missed the 23. June deadline, you can never get the data back of up to that date, from the time you’re born!
Many watchdog groups etc. have voiced their concern that when the Government (that needs money!) sells our medical data, this can potentially sold to insurance companies. So, if you are buying travel insurance for a trip to America or elsewhere, the insurance comoany can check your medical records and refuse to sell insurance or raise the price depending if you have a healt condition already. Etc. etc. etc. The possibilities for abuse and exploitation is ENDLESS!
On below page of the digital NHS website, scroll to the link “returning this form”
Download, fill in & send to your GP by 23.06. including for your children and/or anyone that you care, like elderly person, demttia patients, people with disability, anyone you are a legal quardian for etc.
https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research/transparency-notice
Again,
❗️This is the Type 1 opt-out of the upcoming data base❗️
This is THE MOST important document you need to download and hand to your GP by 23. June 2021!
DON’T get confused with the “National opt out” which can be easily done online! You NEED the “Type 1” opt out and give to your GP! I emailed it AND hand it in, double secure!
Pass this info on to as many people as soon as possible! I went to my library and told them, they didn’t even know. I ask if a poster can be put into windows like they do for the settlement scheme for EU citizens.
Yahoo article:
https://uk.news.yahoo.com/nhs-data-scrape-opt-out-june-23-deadline-135456270.html?guccounter=2
And then there is also another NHS data opt-out link directly at the NHS site that you should also opt-out if you don’t want your data shared.
Please click: https://www.nhs.uk/your-nhs-data-matters/manage-your-choice
So, understand that there are 2 DIFFERENT opt-out links you should use.
Also, please be aware that since 2020 the UK government has voted that upon death, every UK citizen will become an organ donor by defaultupon death UNLESS you also opt out during life time. MANY people don;t know this!
In my opinion, this has NOTHING to do with saving lives but with making money as the organ donation industry is a multi-billion industry.
I am FOR organ donation, but during lifetime. I’d like to be in control of when I donate an organ and not have my corpse buthcered and harvested for money.
If you opt out, tell your closes loved ones and also request copies to give one to your GP and whoever is looking after you medically, like if you are already in longterm care. And don;t let ANYONE make you feel bad for opting out.
My take is, that in life governments take and take and take, and then they want to take in death as well! I am fed up with these vultures who want the very core of us. There’s no dignity in this! And if anyone argues that in case I get sick and need an organ, I have had a lot of tragedy and losses in my life. I am old fashioned and let life do its course. So, stop judging me for MY decision over MY organs or property.
Don’t ever let ANYONE gaslight, manipulate or pressure you into making decisions that you do not want to make!
So, if you are happy with your organd being harvested after you die in the UK, you don’t have to do anything.
If you don’t wish to donate, the link to opting out of organ donation,and request a copy of your decision for your fie and family: https://www.organdonation.nhs.uk/register-your-decision/do-not-donate
You can always opt in again any time.
I myself consider donating an organ during lifetime if a friend or someone I know is in dire need of an organ and I’d match. But that’s my decision in life. My organs and tissue is NOT there for others to make profit off.
And for those with strong nerves, please listen to the podcast Stuff They Don’t Want You to Know episode “Body Brokers“. What they do in America with organs, especially of poor people.
Stay safe and informed, and pass these issues on far and wide.
expret.org
UPDATE 2022
Link to article
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